Welcome to The ENGAGE Toolkit!

Rigorous, generalizable genomic research requires inclusion of the full spectrum of human diversity.

Many adults with intellectual disability are highly motivated to be in research. Their inclusion can promote improved health outcomes and yield insights for them and others.

We are a team of people with and without intellectual disability. Together we created The ENGAGE Toolkit to help researchers responsibly enroll adults with intellectual disability in precision medicine research and other health research.

Use The ENGAGE Toolkit to:

• Create customized, editable consent materials for your study
• Learn best practices for consent
• Download guidance and editable consent templates

The ENGAGE Toolkit Research was supported by the Eunice Kennedy Shriver National Institute of Child Health & Human Development (NICHD) and National Human Genome Research Institute (NHGRI) of the National Institutes of Health under Award Number R01HD108701 (MPIs McDonald & Sabatello)